Well, it's been a tough few days...
Treatment last Thursday was as per normal, a pleasant day "sitting"; but sadly it highlighted a continuing Mg deficiency (just!), which meant an appointment with my now expected 4 hour dose on Saturday.
And what an experience! Lack of ordinary chairs meant I was upgraded to first class (frequent flier miles?!?!), in a very pleasant side room, on the most comfortable adjustable bed, receiving visitors like some maharajah!!!
(As it happens, Saturday was a dreadful day of thunderstorms, and the sideroom shielded me from the worst of a direct lightening hit, which took out the centre's power and phones! Generators are a wonderful thing...)
But we've discovered a side effect of the side-effect-combatting Mg infusion - it screws up your insides (it's a pretty heavy dose!) - it's not just coming off steroids, it's a double wammy of my body having to cope with the chemo/MAB, and the Mg!
Which meant Sunday through Tuesday were very hard work, basically repeating the cycle 12 pattern of duvet days. But this time around we were ready, and in particular rolled with it, using other side effect combatting drugs in time and letting "nature" take it's internal course (literally!) - which meant, unlike last time, Wednesday was NOT a duvet day! Far from it... I got up and made diana's mornomg tea!! And while I'm a little wan today, we're on a far far better trajectory, looking forward to more "better days" than the last cycle.
Suffice it to say we are definitely sticking with the infusion (more ideas for limiting it's effects for next time) - we do not want the Mg pills. So overall we're still on course, 13 uninterupted fortnightly cycles, with #14 in a week and a scan in 10 days...
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